Lucas has been diagnosed with in utero left sided plagiocephaly (significant flattening and asymmetry of the back of the head and face and ear misalignment) and we have been seeing a physical therapist for his torticollis (a condition in which the head is tilted toward one side, and the chin is elevated and turned toward the opposite side) for three months.
The good news is that plagiocephaly and torticollis are not life threatening and are easily treated.
Yesterday, we were told Lucas is a candidate for the DOC Band, a lightweight 6-oz helmet, that works by applying mild holding pressure and redirecting growth to less prominent areas. The band must be worn for 23 hours a day, only removing for bathing and dressing for up to four months.
The use of DOC Band is NOT a cosmetic fix, it is a restorative fix designed to bring the infant’s head back to its normal head shape and balance the asymmetry.
I am devastated.
I don’t want my baby to wear this device.
I think my son is perfect exactly the way he is.
I don’t want strangers to stare at him in the band. I don’t want to hear their comments or questions and I certainly do not want to respond to them.
I am angry that my OBGYN and ultrasound technicians didn’t see in the umpteen ultrasounds I had done that my baby was crunched up in my womb. We could have possibly repositioned him.
I am vain.
I am also a mother who wants the very best for my child. A misshapen head can lead to vision problems, ear infections, headaches and speech disorders. Not to mention the psychological impact of society’s often cruel view of deformity.
This is going to be a difficult four months for me, but Lucas will never remember it and in the long run will probably thank us for making this decision.
The best is yet to be and you’re welcome, my love.