Letters For Lucas

Wonders, Mishaps, Blunders and Joy.. commentary on my life as a mom in the form of letters to my son

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Frozen: Six Options

Posted on August 16, 2015 Written by Tonya

My six-year-old son doesn’t remember hanging out with me for countless hours in our fertility doctor’s waiting room.

Much more patient than I ever was, I might add.

He doesn’t recall the separate, much smaller waiting area for patients who already have children.

He has no memory of the kind nurses, physician’s assistants, lab technicians, doctors or receptionists who knew him by name, gushed over his long eyelashes and offered him lollipops every time he visited.

He doesn’t recollect his father administering the twice daily shots of progesterone in the fleshy part of my hips or the heparin shots I’d give myself in my belly or the handful of pills I would take as we practiced his counting.

I’m grateful that Lucas doesn’t remember our struggle to give him a sibling, but I do. Just like it was yesterday.

And when he wistfully asks when I am going to have another baby, my heart aches and I am taken aback.

There are also times when it is just the two of us and his little sister is being cared for so we can do “big kid stuff” and he’ll announce unabashedly, “I really love Lola but I am so glad she isn’t with us right now”. Once again, my heart aches and I am taken aback.

It is no secret that our daughter, Lola is an IVF baby.

A miracle baby.

But aren’t they all?

After struggling with secondary infertility for over three years; having six miscarriages, countless failed natural cycles, IUIs and one failed IVF, our second attempt at IVF worked!

Of the five eggs retrieved, three fertilized but only two were good after PGD (pre-implantation genetic diagnosis).

A boy and a girl.

The girl became Lola.

The other embryo is still frozen.

Typically two embryos are transferred increasing the odds of conception or attaching to the uterine wall, but in my case, my fertility doctor’s statistics were better with patients with my history and age to only transfer one embryo.

All it takes is one!

Thinking pessimistically, I thought we would fail again and try to use the second one right away, but instead we succeeded!

We were lucky.

And now we have an embryo on ice.

The boy.

It costs roughly $350 per year to store.

We have six options and please trust that this is a deeply personal decision, a moral and ethical decision and there is so much more to each and every one of these options than what I have shared here. It is weighting heavily on  my mind and heart and so I write about it. Because that is what works for me.

I’m also not looking for advice or a solution.

It will come to us, my husband and I.

In time.

Throughout this process, I realize that the further away from my fertility struggle I get, it is still there, front and center, ready for access.

Six Options:

1. Transfer. It works and we go from a family of four to a family of five. Of course, I just turned 43 and my husband is already 43 and our family feels perfect just the way it is. This option also involves a heavy dose of fertility medications and doctors visits throughout the pregnancy. Due to my age, I’m already considered high-risk and given my struggles in the past, I will see a perinatologist beginning at 12 weeks, if not sooner. A very small price to pay for an addition to our family, but must be considered nonetheless. Can my body go through all that again? I still have bruises from my pregnancy with Lola, who is a year and a half! Are we naive to think everything will work out as well? And let’s say we make it full term, what would our family of five look like? What if this third child needed additional care of one sort or the other? So many questions.

2. Transfer. It doesn’t work and we grieve the loss and move on the best way we can.

3. Donate. We know the fertility struggle all too well and would love to help a couple or family have a child or another child. Sounds simple enough and completely altruistic, but dealing with the fact that our “son” is out there somewhere could be more than we can bear.

4. Put the embryo up for adoption. Yes, you really can do this, but again see above. Plus, I doubt either of us could ever accept payment for our embryo.

5. Discard. At this moment in time, time option is out of the question. I simply do not have the heart or strength for this. And I probably never will.

6. Store. Continue paying storage fees until the end of time.

Option 6 it is.

For now.

We have decided to table our decision for six months.

According to the National Embryo Donation Center, an estimated 600,000 unused embryos are currently frozen in clinics throughout the country. 

Last year, doctors at IVF clinics performed more than 165,000 treatments — more than ever before.

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Filed Under: a mother's guilt, aging, challenges, confession, controversial topics, conversations with Lucas, difficult subjects, health, infertility, pregnancy, siblings Tagged With: a mother's guilt, aging, challenges, confession, controversial topics, conversations with Lucas, difficult subjects, health, infertility, pregnancy, secondary infertility, siblings

Shooting Stars

Posted on May 18, 2014 Written by Tonya

One year ago today.

The appointment was scheduled for Saturday, May 18 at 10:00 am.

Two embryos.

One boy.

One girl.

Cyropreserved and stored for just over two months.

We told our reproductive endocrinologist to let the embryologist randomly choose.

We didn’t care.

We just wanted a baby.

I wore one pink sock and one blue sock for luck. Or to be cute. Or to appear  lighthearted when I was anything but.

We were given photos of each embryo. A clump of cells five days old.

Just breathe was my mantra that morning along with What if it works? What if it doesn’t? running through my mind on repeat.

After identification had been verified, the entire procedure took less than five minutes.

On the small dark monitor, it looked like a tiny but bright shooting star, a burst of magic—our baby being released into my uterus.

One year ago today was my embryo transfer.

It was both terrifying and exhilarating.

The two weeks that followed were nerve wracking. Taking it easy, staying off my feet and hanging out in our apartment.

On the morning of May 30, there would be a blood test to determine the presence of the pregnancy hormone in my blood.

It was there.

It worked!

download-1

This image is still my screen saver. Click on image for source.

Finally.

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Filed Under: doodlebug, infertility, IVF, pregnancy2 Tagged With: doodlebug, infertility, IVF, one year ago today, pregnancy2, secondary infertility

Life After Infertility: Infertility Awareness Week 2014

Posted on April 20, 2014 Written by Tonya

downloadOne in every eight couples in the United States are affected by infertility.

Nearly six million families are childless. Some chose this option, but many more long for children that never come.

According to the National Survey of Family Growth, more than 1 million couples grapple with secondary infertility, a couple’s inability to conceive a baby, even though they’ve had at least one child in the past.

My husband and I are one of these couples. Since Lucas’s first birthday, I have had five miscarriages, one with the aid of IVF treatment and one incredible success! 

April 20-27 is Infertility Awareness Week and each year during this week I will write about my personal battle and reflect on the ups and downs that consumed my life for three and a half years as my husband and I longed for a second child. I will think of others that faced the same fight and either beat it and have a precious child in their arms or are at peace and have moved on from it. And in my heart, I will always hold a special place for those currently in the thick if it, hoping, wishing and praying for a miracle baby of their own.

I have and always will be open about my struggle with infertility. I could have never have suffered in silence. Not everyone is like that.

I got my miracle baby, my sweet Lola and I am grateful for what I had to endure to get her. You read that right, I am grateful for my struggle with infertility. Not everyone can say that.

I know what you’re thinking… Yeah, sure you can say that now that it’s behind you and you have had success, but I honestly really wouldn’t change a thing. Sure I wish it hadn’t taken so long or cost so much, but my battle to have a second child put me in places where I know my ego would have never otherwise taken me. Working so hard for something at the end of the day I had zero control over made me trust others like I never have before, relinquish control and be the most vulnerable I ever have been in my life. I learned a lot about myself too; my tolerance for stress, pain and heartache and how to be patient (or at least patienter). It gave me strength and made me grateful. It is behind me, but I will always remember the pain, the tears, the roller coaster ride.

I also made some amazing friends who were or continue to be struggling too and there is nothing in the world like not being alone. Fighting the most difficult battle of your life can be isolating and very lonely.

I hate that anyone has to deal with infertility issues, but if you are or someone you love is facing this battle, please visit RESOLVE, the National Infertility Association Website and attain the support you need to make the best decisions for you and your family.

You are not alone. Do not give up hope.

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Filed Under: infertility, IVF, miscarriage, pregnancy2 Tagged With: infertility, infertility awareness week, IVF, miscarriage, pregnancy2, secondary infertility

Live & In Person

Posted on April 3, 2014 Written by Tonya

Several times I have shared how much I love music, from my current workout playlist, to favorite songs and my adoration of Dave Matthews.

I have a short list of songs that I *must* hear performed live before I die because they are some of my all time favorites, meaningful to me and have helped me find my voice when my own words have failed me or I simply admire the artist so much that I have to see them in concert. In alphabetical order, they are:

  • #41 by The Dave Matthews Band*
  • A Thousand Years by Christina Perri*
  • Anna Begins by The Counting Crows*
  • Clarity by John Mayer*
  • Good Enough by Sarah McLachlan
  • Nick of Time by Bonnie Raitt*
  • Piano Man by Billy Joel*
  • Pictures of You by The Cure
  • Second Hand News by Fleetwood Mac*
  • Someone Like You by Van Morrison

I’ve been lucky enough to see the starred ones, some more than once!

Last night I saw Christina Perri at a small radio marketing event that my sister’s company was involved in at the Hard Rock Cafe in Hollywood. Perri sang only three songs, two from her new album, released this week and opened with “A Thousand Years”.

I cried through the entire song. I didn’t sing along even though I know every word, I just cried.

I loved the Twilight series, read the books and was first in line to see the movies (all five), but I don’t remember hearing Perri’s song during the credits of The Twilight Saga: Breaking Dawn—Part 1. Apparently after fans heard it on the movie’s soundtrack, they adopted it as “Bella and Edward’s song”. It’s significance to me isn’t Twihard related; for me it served as an anthem during my struggles with infertility, a love song to a child I longed to meet someday.

I’m still recovering/processing/coming up for air from that chapter of my life and it’s proving to be harder than I thought. Infertility is a crazy roller coaster ride of ebbs and flows, hope and disappointment and there were some very dark days when I didn’t think I could handle it anymore and those were the days I turned to my infertility playlist for inspiration, a good cry and above all comfort. “A Thousand Years” is on that playlist and will always be a favorite and gentle reminder of a very difficult period of my life.

Last night was only the second time I have heard the song since my miracle, Lola was born and I was completely overcome with emotion. It’s a beautiful and moving song.

I have died everyday waiting for you
Darling don’t be afraid I have loved you
For a thousand years
I love you for a thousand more

And all along I believed I would find you
Time has brought your heart to me
I have loved you for a thousand years
I’ll love you for a thousand more

Not only did I get the chance to hear Christina Perri live, I also met her after her set and told her how much her song means to me. She was gracious and kind and asked how everything turned out and thanked me for sharing my story.

It was a very special experience. Thank you, again, Leah! You better believe I rushed home to snuggle our little Lola.

PicMonkey Collage1

Meeting Christina Perri – Hard Rock Cafe, April 2, 2014

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Filed Under: aunt leah, DMB, infertility, lyrics, movies, music Tagged With: aunt leah, Christina Perri, DMB, infertility, lyrics, movies, music

Dear Baby Girl

Posted on December 31, 2013 Written by Tonya

My first Letters For Lucas post was Dear Baby Boy, a letter I wrote to Lucas before he was born. I wrote this letter when my heart was light and my cares were few. I was bursting in anticipation to meet our son and loved every minute of being pregnant with him. Looking back, I took my entire pregnancy for granted. I was native. I didn’t realize at the time what a miracle getting pregnant and staying pregnant was. A long hard three and half year battle with secondary infertility would teach me what a gift bringing a child into this world truly is.

Our baby girl will be here very soon and I know her arrival is going to be something I will have a hard time putting into words. It’s hard for my brain to go there even now as I feel her slowly move and adjust inside my belly. I can’t wait to meet her and hold her and kiss her and be her mother. 

I wrote the following letter on Sunday, December 22 at 3:53 AM, I was 35 weeks pregnant:

Dear Baby Girl,

In just a few short weeks you will be here and I’m feeling surreal, scared and overwhelmingly happy. Finally, after years of trying, years of hoping and wishing and praying for you, you will be here.

My daughter. I never thought I would be the mother of a daughter, but now I can’t wait! It is such a wonderful time to be a woman in this world and I already know what a fighter you are.

You aren’t even here yet and I have fallen madly and completely in love with you and you will never know how much I have dreamt about the day we meet, in fact just thinking about it makes my heart twinge and eyes fill with tears. You are so very wanted and we have been waiting for you for so very long.

This is an exciting time for our family, we just moved into a beautiful new house but I know it won’t be until after your arrival that it starts to feel like a home; that it feels complete.

Your brother is anxious to meet you too and is already very protective of you. I hope the two of you will be the best of friends and that you protect him as well. He is an amazing boy and I know he will be a good big brother to you. Some day when your father and I are gone, he will be all you have left of us. Be there for one another and always be strengthening your relationship.

I know that you and I will have our ups and downs but we are forever bonded as mother and daughter and I will cherish you and our relationship always. May you never ever doubt my love.

Anxiously awaiting your arrival.

With all my love,
your mother

And all along I believed I would find you
Time has brought your heart to me
I have loved you for a thousand years
I’ll love you for a thousand more.

– A Thousand Years, Christina Perri

(This was my “go to” song so many times throughout this journey to have you and I love the lyrics.)

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Filed Under: gratitude, home, infertility, love, lyrics, motherhood, MY FIRST POST, my letters, pregnancy2, siblings Tagged With: gratitude, home, infertility, love, lyrics, motherhood, MY FIST POST, my letters, pregnancy2, siblings

If It’s A Boy…

Posted on September 30, 2013 Written by Tonya

When I was pregnant with Lucas, even after finding out he was a boy, we consciously registered for and bought a lot of gender neutral items… reds, tans, greens. Even his nursery furniture and decor could go either way.

But, clothes are a whole different ball of wax.

I have diligently saved all of my favorite articles of clothing that Lucas has outgrown, others I donate or pass along to friends.

If our next baby is a boy, he’ll be set! He’ll be able to wear practically brand new and/or gently used onesies covered with footballs, basketballs and baseballs, several pairs of Vans sneakers, brown loafers, Crocs with Spiderman buttons, Superman, Star Wars, Cars, airplane and vintage car T-shirts, an adorable vest with a train on it, countless blue, brown and black striped and collared shirts, so many cargo pants I’ll never have to buy another pair and dinosaur, monster, pirate, insects and boat pajamas.

If this baby is a girl…we’re screwed!

Guess what? I revealed Sunday that we are having a girl when I participated in RESOLVE’s inaugural Southern California Walk of Hope. 

More than 280 walkers and $50,000 raised for RESOLVE. These funds will support local fertility programming, public awareness initiatives, and advocacy efforts to ensure that all family building options are available to all. No one should face infertility alone.

I walked for my daughter, in hope that she never faces the fertility struggles that I have and if she does, she’ll know she is not alone.

More on being a mother to a girl later…

Walk of Hope - September 29, 2013

Walk of Hope – September 29, 2013

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Filed Under: clothes, doodlebug, gender differences, infertility, pregnancy2 Tagged With: clothes, doodlebug, gender differences, infertility, pregnancy2, secondary infertility

Shaking That Feeling: What Infertility Struggles Do To You

Posted on September 20, 2013 Written by Tonya

At one point I had four doctors.

Recently having “graduated” from the fertility clinic I have been at for over three years, I now only have three.

Since day one all of them have assured me that what I’m feeling is natural, especially given my history.

They tell me everything looks great and right on track.

I’m having a hard time believing them.

Even though I’ve seen the black-and-white images of a tiny human doing somersaults with my own eyes.

Even though I’ve studied the positive test results and measurements.

Even though I’ve heard the sweet sound of a rapid heartbeat.

Even though….

There is no doubt that I am being carefully monitored and yet, I’m still fighting to shake this sinking feeling.

Fighting to relax.

Fighting to carry this baby to full term.

Fighting to fully embrace this pregnancy.

Fighting to push the negativity out of my head and forcing myself to expect the best instead of the worst.

If I have learned anything through my struggle to get here, it’s that I have ZERO control, a devastating set back can happen at any moment and it’s better to protect yourself. That’s what infertility does to you. It forces you to keep on your toes, read into every twinge, keep your doctors all on speed dial and anticipate gloom.

So I will continue to fight and protect myself until this baby is safely in my arms.

For me making it successfully past the half way point is cause for [cautious] celebration, or in my case, compiling a short list of potential names, considering shower dates, preregistering at the hospital where I plan to deliver and browsing through a baby boutique where I allowed myself to purchase a pack of onesies.

photo72

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Filed Under: infertility, pregnancy2, worry Tagged With: infertility, pregnancy2, secondary infertility, worry

Somebody Pinch Me!

Posted on September 5, 2013 Written by Tonya

Jimmy Fallon and his wife recently welcomed a daughter and revealed that they spent years trying for a baby before it finally happened via surrogate and I love what he shared with Savannah Guthrie on The Today Show…

I know people have tried much longer [than we have], but if there’s anyone out there who is trying and they’re just losing hope, just hang in there. Try every avenue; try anything you can do, ’cause you’ll get there. You’ll end up with a family, and it’s so worth it. It is the most ‘worth it’ thing.

So perfectly put.

After throwing everything we have at our secondary infertility and it has been a very long three year battle, my husband and I are finally expecting a baby! 

I shared our amazing news on Facebook and Instagram today and I am touched by the out pouring of love and congratulations. So many of our family and friends and wonderful people I have met through blogging and sharing our tale have been rooting for us and supporting us throughout this difficult journey. Part of me still doesn’t believe it! I keep waiting for someone to pinch me.

If you have been reading my blog for any length of time or know me IRL, then you know I keep track of everything, so I wanted to share this list.

I share it, not as a formula for how to have a baby if you or someone you know is struggling with infertility and by no means as a way of comparing what we went through versus what you may be experiencing, I’m sharing it because as a society, we need to talk about this disease more and everything that it encompasses; the ups, the downs and all the challenges and in between. This is a topic that I am very passionate about and I believe always will be. 

After…

Tens of thousands of dollars spent,
95 Four Square check ins to my fertility doctor’s office, 
45 (and counting) acupuncture sessions,
16 failed natural cycles,
12 therapy sessions (a mixed blessing of discomfort and insight),
10 RESOLVE support group meetings,
6 Facebook support groups,
5 miscarriages,
3 friends who kindly gave me shots when Todd was out of town, 
3 failed IUIs,
2 D&Cs

2 OBGYNs,
2 acupuncturists,
2 reproductive endocrinologists,
2 failed IVF cycles,
2 2AM 24-hour drug store drive-thrus for syringes,
2 needle/hazardous materials spills in my car,
2 visits to a psychic,
1 major meltdown in the baby aisle at Target,

1 trip to the ER,
1 participation in a panel discussion on infertility,
1 infertility column,
1 amazing team of doctors, who I could never thank enough,
a library worth of books on infertility collected and read, and
countless doctor visits HOURS spent sitting in waiting rooms, blood drawls, ultrasounds, angry phone calls to our health care providers, prescriptions filled, pills popped, herbs choked down, shots in the abdomen and ass, boxes of Mucinex taken (don’t ask), negative pregnancy test results, bottles of wine consumed, heated discussions over finances and priorities, prayers and wishes made and tears shed, (so many tears).

After all this, I am smiling from ear to ear, grateful for this moment and overjoyed to share this perfect photo:

photo

I refused to give up the fight.

I would not give up hope.

I could not squelch the longing.

I believed in miracles.  

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Filed Under: celebs, challenges, doodlebug, facebook, gratitude, infertility, IVF, miscarriage, pregnancy2, quotes Tagged With: celebs, challenges, facebook, gratitude, infertility, IVF, Jimmy Fallon, miscarriage, pregnancy2, quotes, secondary infertility

There Is Still So Much More To Share…

Posted on July 21, 2013 Written by Tonya

My infertility column on SheKnows has been canceled.

My last post ran on July 1.

I am very disappointed, but extremely grateful for the opportunity to discuss my battle with secondary infertility on such a large platform and on behalf of an amazing organization. SheKnows is one of Forbes Top 100 Websites for Women and one of the Top 10 Lifestyle Sites for Women.

I know for certain my column made a difference to a lot of people. I have had several privately reach out to me to thank me for my words and I am overjoyed that I could be there for them in some small way and that they know they are not alone! Just today I e-mailed with a woman who found out she miscarried after her recent IVF. It breaks my heart, no one should know this pain.

I have been most surprised by family and friends that have shared their struggle with me. I hate that infertility is still such a taboo topic. I would have liked to have known these couples, these women in my life were struggling earlier.

Writing the column was very therapeutic for me too. Writing in general is very therapeutic for me.

Originally intended to run for two months, my column ran for six. I am very proud of the 24 posts I wrote covering everything from the best books on infertility, using humor to get through dark times, how this disease puts your marriage to the test, the importance of infertility support groups and grieving a miscarriage. I put my heart and soul into every word I shared and was pleased to do it with honesty and integrity.

If you missed any of my posts, you can find them here on the SheKnows.com site or on my personal Secondary Infertility Pinterest board. There is still so much to share because this conversation must continue, so I am working on finding another home for my words, in addition to continuing my story here on Letters For Lucas.

I would to thank my editors at SheKnows and all of my supporters, in particular, my DBA friends and Nichole Beaudry, who pretty held my hand every step of the way. xo

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Filed Under: DBA, gratitude, infertility, SheKnows, writing Tagged With: DBA, gratitude, In These Small Moments, infertility, SheKnows, writing

Listen To Your Mother: Before, During and After

Posted on July 18, 2013 Written by Tonya

Feeling equal parts terrified and exhilarated, I pressed send.

It was almost six months ago that I e-mailed my Listen To Your Mother submission. I waited on pins and needles for 10 excruciating days, waited for an invitation to audition or not.

Either way, I’d be fine. I took a chance by submitting a piece. And one of the grittiest posts I had ever written.

When the invitation came, I felt more validated that I had in a long time.

Validated and nervous.

My audition went better than I could have ever hoped. I felt good. I nailed every word and left not only proud of myself, but very honored having been asked to read my piece at all.

Even if I wasn’t cast I had already stepped way out of my comfort zone by sharing a part of myself that only few get to see. Sure I had shared it here first, but reading it out loud, owning my words was very different. It put me in a place of intense vulnerability.

More waiting…

Three days later I learned I would be a member of the 2013 inaugural Sacramento Listen To Your Mother cast. I was elated. This was the best news I could have received, especially on that particular day, having just found out we had to move and that our current round of IVF had to be postponed. Again.

What transpired over the following next weeks was life changing. I met the most amazing women, heard their stories of courage and strength, humor and sorrow, wisdom and love and took the stage with them and for one magical night we were united and shined together.

My knees shook as I took my place at the podium on Mother’s Day and read this:

I haven’t been able to write about my LTYM experience until now and I haven’t been able to watch my video yet either. I’m too afraid to explore why, but I believe it has everything to do with the fact that I am still battling my secondary infertility and even though it feels like I’m winning most days, others it feels like anything but.

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Filed Under: infertility, Listen To Your Mother, update, video Tagged With: infertility, Listen To Your Mother, update, video

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